31st Hemophilia Symposium: Hamburg 2000 by I. Scharrer,W. Schramm

By I. Scharrer,W. Schramm

a few 23. five% of all participants and sufferers of remedy facilities accomplished the questionnaire. One notable truth is that participation was once optimum among aged sufferers with serious hemophilia, while purely 12. 2% of kinfolk spoke back. overview of the implications published that almost all of individuals desire deal with­ ment in a hemophilia therapy middle with a excessive acceptance, while in simple terms 2. 7% think about remedy in a really good perform to be enough. the explanations for which are the need of the 24-h-availability of a doctor, general certified exam of joints and muscle tissue, documentation of product batches, laboratory exams and sturdy cooperation with different schools. As many as sixty eight. nine% of the sufferers occasionally commute greater than two hundred km. What definitely performs a task this is belief within the remedy heart and its physicians, for it truly is visible that regardless of the truth that seventy four. three% re­ quested standardized remedy regimens for all remedy facilities, in basic terms approximately 20% might switch to a closer middle. therapy with issue concentrates is mostly thought of to be very secure. that's to assert, fifty eight. 1 % regard recombinant items to be very secure, while in simple terms 24. three% suppose this for plasma items. in comparison, there have been frequently no significant adjustments saw relating to consequence (factor intake, length of deal with­ ment). elevate in greatest garage temperature (47. 2%) and half-life (73%) have been the main common solutions to the query of what positive aspects the goods may still have.

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